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Data Collection Overview

Australian Capital Territory Maternal Perinatal Data Collection (ACT PDC)

Data Collection Sources

Midwives complete the electronic ACT Home Birth Midwives Data Collection PDF form or enter information into their hospital electronic birth outcomes system for all births within the scope of this collection.

Institutional environments

The Epidemiology Section is responsible for data management, analysis and reporting of the ACT Maternal Perinatal Data Collection (ACT PDC). The Epidemiology Section is part of the Health Improvement Branch of the Population Health Division of ACT Health. There are four hospitals (two public and two private) in the ACT providing maternity services to ACT residents and residents of the surrounding regions of NSW.

Relevance and Scope

The scope of the ACT PDC includes data on all births, both live births and fetal deaths, of at least 20 weeks gestation or at least 400 grams in birthweight, that occur in hospitals, birth centres and in the community within the ACT. Therefore it includes births that occur in the ACT to both ACT residents and non-ACT residents. These data contain the Perinatal National Minimum Data Set that is reported annually to the Australian Institute of Health and Welfare. The data collection does not include births to ACT residents that occur outside the ACT.
The ACT PDC is overseen by the ACT Maternal Perinatal Information Network (ACT MPIN). The aims of the ACT MPIN are:
• To encourage and facilitate communication about maternal and perinatal data information issues between service providers, policy makers, information managers, researchers and consumer representatives involved in Maternity and Perinatal Services in the ACT as well as nationally and internationally.
• To improve the ACT PDC and the reporting of the information from the collection within the ACT.
• To promote the use of the ACT PDC for relevant research to guide policy development and underpin the development of evidence based policy and clinical decision making to improve Maternal and Perinatal outcomes in the ACT.
All ACT Maternal Perinatal data is reported electronically, over time this is expected to improve timelieness and the Epidemiology Section and ACT MPIN are continuing to work towards this goal.

Timeliness

The time period between publication and the most recent year of data collected is approximately 3 years. The most recent report was Maternal and Perinatal Health in the ACT 1999 – 2008 published in March 2011.

Accuracy

These data are validated against the ACT Admitted Patient Care Data Collection and ACT perinatal deaths data to ensure quality and completeness. The ACT PDC liaises with homebirth midwives to maximize the collection. Extensive cleaning of both mother and babies personal identifier numbers has improved data linkage between the ACT PDC and the Admitted Patient Care Data Collection (APC). Missing data is obtained from the ACT APC data collection or by direct request from hospital medical records or the homebirth midwife, when this is possible.

Accessibility

Reports produced by the Epidemiology Section are available in hard copy and online. The latest publication is Maternal and Perinatal Health in the ACT 1999 – 2008.
Data may be requested from the data custodians. Formal research projects must conform to the National Health and Medical Research Council Guidelines, and be approved by the ACT Human Research Ethics Committee. Requests for access to ACT PDC should be made to PerinatalData@act.gov.au.

Interpretability

Definitions can be found within the report and in the glossary at the back of the reports produced from each dataset (Maternal and Perinatal Health in the ACT and Perinatal Mortality in the ACT).

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